Geometry.Net - Basic_S: Scleroderma

Scleroderma
WELCOME TO MY PAGE OF scleroderma LINKS HOME PAGE Celebrity Health Watch Bob Saget promotes scleroderma awareness. INTELIHEALTH-scleroderma
http://www.enetis.net/~rbreske/scleroderma.htm

Extractions: BELOW ARE A LIST OF SCLERODERMA LINKS, MOST OF WHICH OFFER ONE OR MORE OF THE CATEGORIES LISTED BELOW. SO SURF THE SITES AS EACH OF THE LINKS PROVIDED ARE WELL WORTH CHECKING INTO. Celebrity Health Watch - Bob Saget promotes scleroderma awareness INTELIHEALTH-Scleroderma Research Receives A Boost From Multiple NIH Grants
HJD | Department Of Rheumatology
The Department of Rheumatology at the Hospital for Joint Diseases is dedicated to the diagnosis and treatment of all patients with diseases of the joints such as Arthritis; bone diseases such as Osteoporosis; soft tissue diseases such as Tendonitis; and autoimmune diseases such Lupus and scleroderma.
http://hjd-www.med.nyu.edu/Rheumatology/

Extractions: The Department of Rheumatology at the Hospital for Joint Diseases is dedicated to the diagnosis and treatment of all patients with diseases of the joints such as Arthritis ; bone diseases such as Osteoporosis ; soft tissue diseases such as Tendonitis ; and autoimmune diseases such Lupus and Scleroderma This is accomplished through a balance of education, research, and clinical care of patients with various rheumatic disorders.
Handout On Health: Scleroderma
Health Topics Publication Date July 2001. Handout on Health scleroderma.This booklet is for people who have scleroderma, as well
http://www.niams.nih.gov/hi/topics/scleroderma/scleroderma.htm

Extractions: Publication Date: July 2001 Handout on Health: Scleroderma This booklet is for people who have scleroderma, as well as for their family members, friends, and others who want to find out more about the disease. This booklet describes the different forms of scleroderma and provides information on their symptoms, diagnosis, and treatment, including what patients can do to help manage their disease and the problems associated with it. It also highlights current research efforts into the understanding and treatment of scleroderma, many of which are supported by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) and other components of the National Institutes of Health (NIH). If you have further questions after reading this booklet, you may wish to discuss them with your doctor. What Is Scleroderma?
Scleroderma Society Of Canada
A nonprofit society raising awareness of and funding for research and a cure. Good factual information about this disease.
http://scleroderma.ca
Scleroderma
News, information, and support for patients with this disorder. Links to other sites.
http://arthritis.about.com/cs/sclero/index.htm
Scleroderma
scleroderma. scleroderma (sclairerow-DER-ma) is a disease that can cause thickening,hardening, or tightening of the skin, blood vessels and internal organs.
http://www.arthritis.org/conditions/DiseaseCenter/scleroderma.asp

Extractions: Resources and Suggestions What Is It? Scleroderma (sclaire-row-DER-ma) is a disease that can cause thickening, hardening, or tightening of the skin, blood vessels and internal organs. Scleroderma is chronic, which means it can last a long time. There are two types of scleroderma: Generalized scleroderma may affect many parts of the body. There are two types of generalized scleroderma: Limited scleroderma occurs gradually and affects the skin and later may affect internal organs, such as esophagus, lungs or intestines.
Juvenile Scleroderma Resources
A parent to parent resource network. Covers exercise, online support, recommended books and personal stories.
http://expage.com/jsdresources
Scleroderma Discussion Board @ Www.ezboard.com
A message board where people living with scleroderma can come to discuss issue thatwe deal with on a daily basis. scleroderma Discussion Board. Invite Friends!
http://pub59.ezboard.com/bsclerodermadiscussionboard
Bay Area Scleroderma Support Group
Includes information about meetings and events.
http://www.bayareasclero.org/

Extractions: Welcome to the website for the Bay Area Scleroderma Support Group! The Bay Area Scleroderma Support Group is a group of Scleroderma patients and caregivers that meets monthly at the Fremont library, 2400 Stevenson Blvd, Fremont, CA 94538. (See Calendar of Events for specific dates and times.) Our meetings are typically attended by 20-30 individuals with a diversity of experiences and symptoms of the disease. We have both male and female patients including children and teenagers. Our meetings usually include times of fellowship and sharing, comparing of common experiences, and presentations on specific topics of common interest to the group. Whether you are newly diagnosed, have experienced the disease for some period of time, or are a concerned caregiver; you are encouraged and welcomed to attend and participate in our meeting. Click here to go to the main menu
SCLERODERMA (SCL) FOUNDATION Of VICTORIA
Raises awareness of this disorder and offers the aims of the support group.
http://www.vicnet.net.au/~sclerofv/

Extractions: to the best Scleroderma Web Site on the Internet!! S c leroderma ( systemic sclerosis ) is a systemic connective tissue disease. One of the hallmarks is thickening or hardening of the skin. This is literally what the word scleroderma means in Greek - ( sclero=hard, derma=skin ). However, the term systemic sclerosis is probably a better name as it tells us more about the condition. This name indicates that (a) it is a systemic disease, that is, it may affect many parts of the body, and (b) sclerosis is the medical term for thickening or hardening of the tissues which is a major feature of this condition. T he Foundation is a self-help group for Scleroderma (SCL) sufferers. Membership is open to anyone who has Scleroderma and to their supporters. The AIMS of the Foundation are To share information about Scleroderma and to promote public knowledge and understanding of it. To provide support for sufferers in coping with Scleroderma.
Sclero
scleroderma. This information is provided as a public service. Beingtold that your child has scleroderma is a very scary experience.
http://www.goldscout.com/sclero.html

Extractions: This information is provided as a public service. No warranty is expressed or implied. Being told that your child has scleroderma is a very scary experience. The first thing you need to know is what type of scleroderma. Sometimes doctors use the word scleroderma when they are referring to localized lesions of morphea (see below). This isnt pretty to look at, but it is rarely serious. Other times a child has linear scleroderma with an area of tight skin on an arm or leg. Again, this isnt pretty, but it isnt life threatening. Other children have progressive systemic sclerosis or CREST syndrome. These are the more severe forms of scleroderma that may be life-threatening. Before you do anything else make sure you know which form of scleroderma the doctor is talking about. It makes a big difference in what problems you are likely to have, what medicines you should take, and in what the outcome is likely to be. There are rare cases in which one form of scleroderma changes to another. However, this is so exceptionally rare that once you have been told which form of scleroderma your child has by an experienced physician you should not worry about the others.
What Is Scleroderma
What is scleroderma? (far left) Lauren's scleroderma resulted in the right sideof her face growing normally, but not the left. The scleroderma Video Series
http://www.starlight-productions.com/what_is_scleroderma.htm

Extractions: Home Scleroderma Video Series What is Scleroderma? (far left) Lauren's Scleroderma resulted in the right side of her face growing normally, but not the left. (Center) Constrictions in tendons (contractures) caused by over production of collagen have left Jill's fingers curled and swollen. (Right) Fran's Scleroderma left her near death in 1982. Stable now, despite loss of a finger, Fran has helped others by serving as a Chapter President in the Scleroderma Foundation, and starting a support group in New York. Links to Scleroderma sites are listed below. Scleroderma is an autoimmune disease of the connective tissue. Although it primarily afflicts women in their child bearing years, the ranks of Scleroderma patients do include both males and children. The two major forms of the disease include limited (CREST) and systemic . The latter has also been referred to as Systemic Sclerosis. Scleroderma is an over-production of collagen, and for this reason, one of the symptoms of Scleroderma is hard skin. Scleroderma taken literally means "hard skin", and this title has probably hurt efforts to publicize this disease. A disease that causes skin to harden doesn't sound nearly as ominous as AIDS, Cancer, Multiple Sclerosis etc. Unfortunately, Scleroderma causes much more than cosmetic problems. In addition to the hardening of the skin, Scleroderma can affect internal organs including the lungs and kidneys, and can cause these organs to fail with potentially fatal consequences.
Scleroderma World
Email list dedicated to scleroderma and other auto-immune problems.
http://www.sdworld.org/

Extractions: SD World is a list dedicated to providing a place where those who suffer from Scleroderma and other autoimmune problems may gather in a warm, friendly forum for an upbeat, open and free exchange of thoughts, ideas and information. We also offer a section of links for scleroderma medical, support, health or fun information. Email List SD World is an email list dedicated to providing a place where those who suffer from Scleroderma and other autoimmune problems may gather in a warm, friendly forum for an upbeat, open and free exchange of thoughts, ideas and information. Click to subscribe SD Round the World SD Round the World These pages Links, Links, Links Links, Links, Links . Are you interested in more information? The internet is a really wonderful source. Here are some links to a few excellent medical and/or informational sites.
Untitled
This site provides general information about scleroderma, treatments,stories, links to other sites, membership form.
http://www.scleroderma.ca/
WebRing: Hub
Information about joining and open to anyone owning or running a webpage that deals with this disease.
http://l.webring.com/hub?ring=juvenilesclerode
Quantitative Analysis Of Scleroderma
Quantitative Analysis of scleroderma. What is scleroderma? Research Paper LAUR 95-2401 Automated Segmentation of scleroderma in High Resolution CT Imagery.
http://www.c3.lanl.gov/~rlf/medical/Scleroderma/main.html

Extractions: What is Scleroderma? Scleroderma is a disease which affects many body systems, but is primarily characterized by thickening and tightening of the skin. More women are affected than men, and the dominant age group is between 20 to 50. The lungs are affected in 70-90% of cases, and develop either fibrosis or changes in the blood vessels which lead to increased pressure in the pulmonary arteries. The fibrosis usually starts with with an increase in lung fiber density near the posterior (back) regions of the lungs. CT imagery frequently shows the initial effects as an amorphous increase in lung density with an appearance like "ground glass". Later stages of fibrosis are characterized by the emergence of a network of coarse lines. These coarse lines eventually develop into regions containing large numbers of small cysts. This end-stage effect is sometimes referred to as "honeycombing" and is non-reversable. The Goal of our Research The goal of our research is to use High Resolution CT (HRCT) imagery to automatically detect and quantify Scleroderma in its early stages. Scleroderma treatments are most effective when applied during these early stages. Automated detection methods can aid doctors in gauging the effectiveness of new treatments over time. We hope to not only quantify regions of Scleroderma lung tissue, but also qualify them as to their type ("ground glass" density, abnormal lines and "honeycombing").
Surviving Scleroderma - The Scleroderma And Autoimmune Digest Email Support Grou
Website dedicated to people suffering from scleroderma.
http://sclerodermasupport.com/support/digest

Extractions: Digest Email Support Group Click Here To Subscribe We are all very different individuals that have become connected through cyber space. We have become like family, a strong family of support for one another. The purpose of this list is for people with Scleroderma, Lupus, Fibromyalgia and associated disorders to feel safe among others who truly understand... to obtain information and support, as well as cope with emotions without fear of judgment. Please come and join our family! You will find a supportive and inspirational haven within to share comments or ask questions. We all understand and are here for you. Subscription information is below.
Associated Conditions - Irish Raynaud's Scleroderma Society
The Irish Raynaud's and scleroderma Society was founded to promote a greaterunderstanding of Raynaud's Disease and related conditions.
http://www.mdimedia.com/irss/schlero.asp
United States Scleroderma Support Groups
Worldwide support group listings and online support resources.
http://www.sclero.org/support/swa/listings/support-united-states.html

Extractions: This Site The Web Scleroderma Webmaster's Association: Sites to Surf! Special Thanks to Judy Tarro of SD World for SWA site design assistance and to Judy, Lynn and Syl for moderating SWAlist for webmasters. EMAIL We're dedicated to helping you find the comfort and/or information you need for dealing with scleroderma or related illnesses. Please feel free to email me at any time. Shelley Ensz, Webmaster Now Available in 18 Languages: Bahasa Malaysia Chinese Deutsche (German) English ... Worldwide Support Groups Scleroderma Sites to Surf! We make it easy to find scleroderma information worldwide. All our services are free, to members and visitors alike. Worldwide Support Free Web Page for Groups - Arabia (United Arab Emirates) - Africa - Australia - Belgium (Belgique) - Canada (Main Page) - China (Chinese) - Denmark - Deutsch (German) - Francais) (French) - Germany (Deutsch) - Greece (Greek) - Hungary (Magyarul) - India - Ireland - Israel (Hebrew) - Italy (Italiano) - Japan (Japanese) - Kannada (India) - Kenya (Africa) - Kiswahili (Kenya, Africa)
Home Page For Www.sclerofed.org - Courtesy Of Www.eNom.com
Minnesota based organization offering patients and care givers support, education, and research funding.
http://www.sclerofed.org

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