1. Huntingtons Disease Association Online Supports people affected by the disease and provides information and advice to professionals.Category Health Conditions and Diseases Huntington s Disease......HDA Online provides news of fund raising events, health care informationand details of research into curing huntingtons disease. http://www.hda.org.uk/

Click on the topics listed above to find your way around the site HDA raffles for 2003 Drugs on the Shelf May Treat HD! Bile acid inhibits cell death in Huntington's disease CARE-HD Study Results ... r Updated document.write(document.lastModified);

2. HUNTINGTON'S DISEASE SOCIETY OF AMERICA IMMUNE SYSTEM LINK DIRECTORY huntingtons disease The Ideal Cancer Clinic. Rejuvenate!! huntingtons disease. Home Page http://www.hdsa.org/

3. Huntingtons Disease CharcotMarie-Tooth Disease. Dysautonomia. Epilepsy. Headaches. Huntingtons' Disease http://neuro-www.mgh.harvard.edu/forum/HuntingtonsDiseaseMenu.html

Huntingtons Disease Menu This is a webforum to discuss and comment on Huntingtons Disease. Click here to Enter a new Neurology WebForum article... This Web Forum is not moderated in any sense. Anyone on the Internet can post articles or reply to previously posted articles, and they may do so anonymously. Therefore, the opinions and statements made in all articles and replies do not represent the official opinions of MGH and MGH Neurology. Neither is MGH or MGH Neurology responsible for the content of any articles or replies. No messages are screened for content. - Very Important Message! - Please Click Here to Read Current Posts: Oct 10, 1997 to Present Useful Websites can be found and posted here! Hurt by insensitvity (1/14/00) 3:54 AM Exam Project!!! (1/11/00) 5:59 PM Chorea (1/8/00) 7:41 AM ... Good to be back (10/14/97) 9:59 PM IMPORTANT: If this page seems to be missing recently added documents, click the "Reload Page" button on your Web Browser to update the menu. Return to the main Neurology WebForum Page. These forums are maintained by the Department of Neurology at Massachusetts General Hospital John Lester - Webspinner

4. Huntingtons Disease Menu huntingtons disease Menu 1/27/97 to present These are articles related to huntingtons disease issues. Please feel free to browse ATTENTION The Neurology Webforums have changed software you cannot reply to any of these posts! http://dem0nmac.mgh.harvard.edu/neurowebforum/HuntingtonsDiseaseMenu.html

Archives Huntingtons Disease - 3/18/95 to 1/27/97 Huntingtons Disease Menu - 1/27/97 to present These are articles related to Huntingtons Disease issues. Please feel free to browse... ATTENTION: The Neurology Webforums have changed software...you cannot reply to any of these posts! Please go immediately to the Main Neurology WebForum page for more information! Friends (2/24/97) 1:12 PM Need HD neurologist in San Diego (2/18/97) 4:10 PM Help Me!!! Info. (2/14/97) 11:50 PM Help me!!! Info. (2/14/97) 11:44 PM ... Australian's at risk (1/28/97) 3:44 AM IMPORTANT: If this page seems to be missing recently added documents, click the "Reload Page" button on your Web Browser to update the menu. Return To the main Neurology Web-Forum Page.

5. Stem Cells And Huntingtons Disease Stem Cells and Huntington’s Disease. In particular, the possible use ofstem cells to treat neurodegenerative disease has made headlines. http://www.hda.org.uk/research/rs025.html

By Samuel Weiss, Ph.D., University of Calgary Member, Research Council, Huntington Society of Canada March 2002 What are stem cells? Stem cells are the primitive cells that are responsible for creating the various tissues of the body. There are skin stem cells, blood stem cells and, most recently discovered, brain and spinal cord stem cells. After the body is created, stem cells go into "hibernation", only emerging when there is a call (need) for new cells. For example, when you tear and lose skin cells, skin stem cells are activated to repair the damage. It was this property that suggested to most people that such stem cells could not exist in the brains/spinal cords of mammals (humans are in that family), because brain and spinal cord does not normally repair itself. In the early 90s, our laboratory and several others discovered that the adult brain (we work on mice, a mammal that has a brain that is similar to humans) does indeed contain these stem cells - and they are very similar to the stem cells we found in the brains of fetal mice. When taken out of the brain of an embryonic or adult mouse and grown in incubators, these stem cells respond to protein growth factors (one is called epidermal growth factor) and they can make many brain cells. One of the brain cell types that they make is a neuron that produces gamma-aminobutyric acid. It is this type of neuron that is principally lost in HD. Thus, these discoveries raised two interesting possibilities: (1) if you can grow lots of these cells in incubators, they might represent a wonderful source of neurons for transplantation into the striatum, part of the inner brain seriously affected by HD, or (2) if you can stimulate the adult stem cells "right where they live" you may be able to get them to make new neurons and "self-repair" the brain.

6. HDA NORTH WEST LANCASHIRE BRANCH Lists general information, branch meetings, local and national contacts, young carers, photographs and diary dates. http://members.aol.com/hdanwlancs/index.html

HUNTINGTON'S DISEASE ASSOCIATION North West Lancashire Branch Dedicated to the Care and Support of Huntington's Families General Information Branch Meetings Local and National Contacts Young Carers ... The whole world owes a debt of gratitude to this community without which the Human Genome Project would not be where it is today! Fact Sheets from the Huntington's Disease Association Fact Sheet 1 All about the Huntington's Disease Association Fact Sheet 2 General Information about Huntington's Disease ... EMail Webmaster - John Griffiths s="na";c="na";j="na";f=""+escape(document.referrer) View My Guestbook Sign My Guestbook [Previous] [Join] ... [Skip Next] This webring is hosted by: HACKERSONS E-Mail: Ringmaster

7. Welcome To Wesley Mission Melbourne Provides a range of services addressing a multiplicity of target groups. The services are aimed at homeless people; young people at risk, the unemployed, disadvantaged children and adults; older people; people in crisis; people with physical and intellectual disabilities; and people with huntingtons disease. http://www.wesley.org.au/

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8. Huntingtons Disease Menu Archives. huntingtons disease 3/18/95 to 1/27/97 huntingtons disease Menu -1/27/97 to present. These are articles related to huntingtons disease issues. http://neuro-www.mgh.harvard.edu/neurowebforum/HuntingtonsDiseaseMenu.html

Archives Huntingtons Disease - 3/18/95 to 1/27/97 Huntingtons Disease Menu - 1/27/97 to present These are articles related to Huntingtons Disease issues. Please feel free to browse... ATTENTION: The Neurology Webforums have changed software...you cannot reply to any of these posts! Please go immediately to the Main Neurology WebForum page for more information! Friends (2/24/97) 1:12 PM Need HD neurologist in San Diego (2/18/97) 4:10 PM Help Me!!! Info. (2/14/97) 11:50 PM Help me!!! Info. (2/14/97) 11:44 PM ... Australian's at risk (1/28/97) 3:44 AM IMPORTANT: If this page seems to be missing recently added documents, click the "Reload Page" button on your Web Browser to update the menu. Return To the main Neurology Web-Forum Page.

9. 2003 Hoop-A-Thon For Huntingtons Disease http://members.aol.com/hoopathon/

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10. Australian Huntingtons Disease Association Australian, Huntingtons, Disease, Association, Australian huntingtons disease Association,Australia, huntingtons disease, Resources, Support, Huntingtons http://www.ahda.asn.au/

AHDA Carers Retreat 10 April,2003 at the River Resort, South Yunderup Easter Picnic Lunch 21 April,2003 Matilda Bay, Crawley International Huntington's Association 31 August,2003 Congress in Canada, August 2003 About Us What is HD? Community Support Education ... Contact Us This page was sponsored by Bovis Lend Lease Designed by Spin Technologies

11. HDAsscNZ/About HD Section Home NZ HD Diagnosis, Care Support; Key Site Resources; Research; Newsletters;Books. About huntingtons disease; About huntingtons disease Section. http://homepages.ihug.co.nz/~ghtaylor/abouthd.htm

The Huntington's Scene In New Zealand Site Maintained by Graham Taylor Site Resources available from the Homepage Key Site Resources Research Newsletters ... Youth About Huntingtons Disease Section Introduction to HD Living with HD (NZ) Predictive Testing Revised Huntington Disease Presymptomatic Testing Protocol. Case Studies Research into Family Responses to Predictive Testing - A Summary Living with HD (Canadian)

12. Huntington's Scene In  New Zealand Website Huntingtons Disease New Zealand The Huntington's Disease Scene In. We acknowledge the generosity of the HuntingtonsSociety of Canada (HSC) for making considerable content publicly available http://homepages.ihug.co.nz/~ghtaylor/

The Huntington's Disease Scene In New Zealand Site Maintained by Graham Taylor Graham Taylor This site last updated About the Associations Auck BOP Wgtn ... Young Peoples Pages Canadian Resources Introduction to HD Publications Research Education ... International HDA Addresses Member Countries Huntingtons Disease New Zealand Key NZ Site Resources National Annual Camp forYoung People from HD Families Newsletter Diet Book ... Naturapathic Medicines and Therapies 21-22 September Judy Lyon's Conference talk " Keeping Myself Well Using Naturopathic Medicines" NZ Research Neurological Foundation Brain Bank By Alison Gray. By Alison Gray Studies by Richard Faull and his team at Auckland University International Research News Being such small community groups we operate within small budgets and limited resources. We acknowledge the generosity of the Huntingtons Society of Canada (HSC) for making considerable content publicly available on their web site and contribute to making the New Zealand site as informative as possible. Such co-operation is a feature of the Huntingtons world-wide community network. Whilst every effort will be made to keep the information on this site accurate and up to date, ‘The Huntington’s Scene In New Zealand’ [HSNZ], those responsible for compiling it will not be liable for any loss or damage arising directly or indirectly from the possession, publication or use of or reliance on information obtained from the Web Site, and reserves the right to make changes without notice. Accordingly, all HSNZ and third party information is provided "As Is".

13. Huntingtons Disease Caregivers Web Directory http://www.geocities.com/huntingtonsdirectory/

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14. Huntingtons Disease huntingtons disease. Home Page. Aging_7 Allergies_2 Ankylosing HuntingtonsDisease Association Online HDA Online provides news of http://www.artritis.net/links/huntingtonsdisease.html

Arthritis Problems? The Ideal Cancer Clinic Rejuvenate!! Huntingtons Disease Home Page Aging Allergies Ankylosing Spondylitis ... Huntingtons Disease Association Online... HDA Online provides news of fund raising events, health care information and details of research into curing Huntingtons Disease... 49 Pages Found, 17 Links Found, 2356 Score, http://www.hda.org.uk Information on adding your web site to the Link Directory These web site links are listed as a convenience to our visitors. If you use these links, we take no responsibility and give no guarantees, warranties or representations, implied or otherwise, for the content or accuracy of these third-party sites. Arthritis Problems? The Ideal Cancer Clinic Rejuvenate!! Top of page

15. Under Clinical Trials Fibromialgia_4 Fibromyalgia_15 For the Disable_13 Forums and Chat_2 HealthAgencies_3 Health Index_3 HIV AIDS_22 huntingtons disease_1 Juvenile http://www.artritis.net/links/underclinicaltrials.html

Arthritis Problems? The Ideal Cancer Clinic Rejuvenate!! Under Clinical Trials Home Page Aging Allergies Ankylosing Spondylitis ... AIDS Clinical Trials Information Service (ACTIS)... The AIDS Clinical Trials Information Service (ACTIS) provides quick and easy access to HIV AIDS information on federally and privately funded clinical trials for adults and children.... 50 Pages Found, 75 Links Found, 1248 Score, http://www.actis.org Eastern Cooperative Oncology Group (ECOG)... The Eastern Cooperative Oncology Group (ECOG) is one of the largest clinical cancer research organizations in the United States, and conducts clinical trials in all types of adult cancers.... 32 Pages Found, 6 Links Found, 1899 Score, http://ecog.dfci.harvard.edu Herbert Irving Comprehensive Cancer Center...   "The mission of the Herbert Irving Comprehensive Cancer is the eradication of cancer via research, education and patient care". Cancer Center Administration Clinical Trials Divisions Executive Comm... 54 Pages Found, 21 Links Found, 746 Score, http://www.ccc.columbia.edu

16. Hardin MD : Huntingtons Disease From the University of Iowa, the *best* lists of Internet sources inhuntingtons disease Huntington's Chorea. huntingtons disease. http://www.lib.uiowa.edu/hardin/md/huntingtons.html

Huntingtons Disease "We list the best sites that list the sites" Site Map Diseases Home Free journals ... Diseases Search Hardin MD See also: Home Neurology All links on this page hand-checked Popular Women's Health Dermatology Nursing Pharm Infect Disease Alzheimers Disease +Pictures Brain Pictures Genetic Disorders Nervous System +Pictures Parkinsons Disease +Pictures A Hardin MD Focus Page Pictures of Huntingtons Disease NOAH: Huntington's disease Rita Neri, NY Online Access to Health Links to organizations Personal sites Huntington's disease advocacy center Information links Huntington's Disease Society of America Planet Amber : Huntingtons chorea Glen Scott, United Kingdom LookSmart : Huntington's disease or Huntington's chorea Open Directory Project : Health : ... : Neurological disorders : Huntington's disease (Other versions: Google AOL MEDLINE plus Huntington's disease National Library of Medicine ClinicalTrials.gov : Huntington disease National Library of Medicine, National Institutes of Health Yahoo : Huntington's disease MedWebPlus : Huntington's disease Steve Foote and Andy Kogelnik, y-DNA,inc, Atlanta, Georgia

17. Research Grants & Projects huntingtons disease Society of America, Inc. HDSA / huntingtons disease Societyof America, Inc. ORGP / Office of Research Grants and Projects. http://www.weizmann.ac.il/orgp_open/postdoc/Huntingtons-Disease-Society-of-Ameri

http://www.weizmann.ac.il/RGP_open/ Remember to correct your bookmarks.

18. HUNTINGTONS DISEASE RESEARCH ROSTER home contact testing reading news funds board links help huntingtons diseaseRESEARCH ROSTER. What is the Huntington's Disease Research Roster? http://www.hdfoundation.org/hdroster.html

HUNTINGTONS DISEASE RESEARCH ROSTER What is the Huntington's Disease Research Roster? A research roster of Huntingtons Disease patients and families was established in 1979 at Indiana University in response to a recommendation from the Commission for the Control of Huntingtons Disease and its Consequences. The Roster is sponsored by the National Institute of Neurological and Communicative Disorders and Stroke. Because the cooperation and assistance of HD patients and families is vital to research, we are asking your help. The HD Research Roster computerizes the names of families, including information about the history of HD in the family (family trees) and other related data. This information identifies HD patients and families who are interested in participating in research projects. What does the Roster do? Many investigators are intrigued by Huntingtons Disease and are eager to work on the problem but need access to HD families. It is important to have a system whereby scientists and HD families can get in touch with each other. The Roster makes this happen by matching the scientist with the right research volunteers listed in the Roster. Some researchers only need statistical information while other special projects may require a sample of blood, urine or skin from HD family members. The people on the staff explain the particular research study to each individual or family. Then, if they are willing to participate and give written permission, the individual's family name and address are given to the investigator.

19. Biomarkers For Huntingtons Disease: The Impact Of New Technologies WHEN AVAILABLE. Biomarkers for huntingtons disease the Impact of NewTechnologies. report by Lisa J. Bain. Abstract With potential http://www.hdfoundation.org/workshop/200202Abstract.html

DRAFT COPY * THE FINAL DRAFT OF THIS REPORT WILL BE POSTED WHEN AVAILABLE. Biomarkers for Huntingtons Disease: the Impact of New Technologies report by Lisa J. Bain Abstract: VIEW ENTIRE REPORT < back to the Workshop section < directly to the home page

20. Huntingtons Disease Family Planning First Aid Fitness Headache Management Hearing Hemophilia HIV andAIDS Home Care Hospice Care Hospitals huntingtons disease Kidney Disorders Long http://www.crozer.org/Health Information/Programs and Services/E through M/Hunti

1-800-CK HEALTH Tuesday, April 08, 2003 LaurusHealth Calendar of Events Programs and Services A through D E through M Eating Disorders Emergency Services Endocrinology Epilepsy Family Planning First Aid Fitness Headache Management Hearing Hemophilia HIV and AIDS Home Care Hospice Care Hospitals Huntingtons Disease Kidney Disorders Long-Term Care Lupus Maternity Men Health Mental Retardation Multiple Sclerosis Muscular Dystrophy N through Z Community Health Senior Wellness Womens HeartAdvantage Notice of Privacy Practices Publications CKHS News Virtual Library Programs and Services Huntington's Disease Huntington's disease is a hereditary brain cell disorder that features abnormal, involuntary movements and leads to dementia. For referral to a specialist, call your doctor or 800-CK-HEALTH Community Resources: Huntington's Disease Society of America (Delaware Valley Chapter) Home About Us Hospitals and Facilities ... What's News ©2002 Crozer-Keystone Health System Updated: 4/30/2002 6:14:10 PM For comments or questions write to Crozer@crozer.org

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